Showing posts with label CFS. Show all posts
Showing posts with label CFS. Show all posts

Monday, December 26, 2011

Brrrrr it's cold outside

I took this article from Fibromyalgia Symptoms website.  I don't like how they use 'claim' when they refer to how those that suffer from fibromyalgia symptoms but the information is good to know.

This past month has been rather cold for here in Arizona.  I do at times feel like a barometor, with truly feeling the effects of how the weather changes.  Not good!  I have been so cold that my wrists have been aching horribly.  Dressing in layers, coats, gloves, hats and long socks (this is not going well with this menopause crap going on also...where's my music because these clothes are coming off often.  It's rediculous, layers on layers off good Lord!
Using a heating pad to keep my hands warm. Keeping my house at 73 and using my heated blanket at night.

I fuss but other than having hands that are just annoyingly achy, I am doing awesome, I don't even bother putting a 'number' for plan level to this current issue.

The guaifenesin protocol really puts your body back in order.  Along with following a proper diet of no boxed, frozen or processed food eating fresh veggies, fruit, no dairy for me and sticking with chicken I am doing wonderful.  I hibernate in the winter anyway but now I am able to do my quilting or projects without the fatigue or just not having the energy at all.

I love that I have got my life back.  Thank heavens for guaifenesin!

Enjoy the article!





fibromyalgia sufferers claim that their symptoms vary according to temperature changes, changes in air pressure, and changes in precipitation in their part of their world. Most fibromyalgia sufferers claim that they experience changes in:
Who is Affected by Weather Changes?
According to a study performed in 1981, a large percentage of fibromyalgia sufferers may actually be sensitive to changes in the weather. In this particular study, 90% of patients claimed that weather was one of the most important influences on their fibromyalgia symptoms. And fibromyalgia sufferers aren’t the only ones to experience weather-related symptoms. You may also find that the weather exacerbates your symptoms if you have:
What Weather Factors Affect Fibromyalgia Sufferers?
There are five major weather factors that appear to affect fibromyalgia symptoms. These include:
  • Temperature: Rapid changes in temperature can sometimes trigger a fibromyalgia flare or help to ease fibromyalgia pain. Cold weather tends to make fibromyalgia symptoms worse, while warmer weather tends to ease those troublesome symptoms.
  • Barometric Pressure: Barometric pressure is a measurement of the weight that is exerted by the air all around us. On beautiful sunny days, barometric pressure tends to be quite high, but during a storm or similar weather front, barometric pressure drops suddenly. Fibromyalgia sufferers often find that these changes in barometric pressure can trigger muscle aches and pains.
  • Humidity: Absolute humidity is a measurement of the amount of water vapor present in each unit of air. When absolute humidity is low, fibromyalgia sufferers often report headaches, stiffness, and flares in widespread pain.
  • Precipitation: Precipitation is the term used to refer to any type of water that falls to the ground from the sky, including rain, sleet, snow, or hail. Precipitation is often accompanied by a change in barometric pressure, and therefore may exacerbate your symptoms of pain and fatigue.
  • Wind: Whether it’s a light wind or a gale-force wind, wind generally causes a decrease in barometric pressure. This means that wind can trigger fatigue, headaches, and muscle aches in fibromyalgia sufferers.
Weather and Fibromyalgia: The Studies
Numerous studies have been conducted in order to evaluate whether or not fibromyalgia symptoms do appear to be influenced by changes in the weather. Most of these studies have had surprising results.
In 2002, a study was conducted in Cordoba, Argentina, where there are four distinct seasons every year. The study involved fibromyalgia sufferers and a healthy control group and aimed to find out whether pain symptoms could be linked to specific weather changes. Participants were asked to rate their pain symptoms on a scale from one to ten, every day for 12 months. After 12 months, these symptoms were correlated to weather patterns for the entire year. Researchers found that pain symptoms of the participants with fibromyalgia correlated directly to weather changes. Specifically, pain increased as temperatures fell and atmospheric pressure increased. The healthy control group did not show any correlation between pain and weather patterns.
Another study performed in Norway found a similar relationship between fibromyalgia symptoms and the weather. Fibromyalgia symptoms appeared to get worse during the months of December and January, but began to improve during April and May. This suggests a direct relationship between colder temperatures and lower barometric pressures and a rise in fibromyalgia symptoms.
Why Does Weather Affect Fibromyalgia Symptoms?
Unfortunately, researchers do not yet know why weather appears to affect fibromyalgia symptoms so much. However, there are a few possible explanations:
  • Change in Sleep Cycle: Weather, particularly hot and cold temperatures, can sometimes affect the way in which you sleep. This could have a great affect on symptoms and flares if you are a fibromyalgia sufferer.
  • Change in Circadian Rhythm: Your body operates using an internal clock known as the circadian rhythm. Changes in seasons and the amount of light that your body receives can throw off your circadian rhythm, causing you to feel fatigued and more achy then usual.
  • Pro-Inflammatory Cytokines: There does appear to be a relationship between low temperature levels and an increase in the number of pro-inflammatory cytokines in the body. These cytokines appear to be related to pain intensity.
Dealing with the Weather: Managing Your Fibromyalgia Symptoms
If you find that your symptoms are influenced by weather changes, here are a few tips to help keep you more comfortable:
  • Dress in Layers: Prepare for those chilly days by dressing in two or three layers. This will keep your body warm and allow you to shed excess clothing should you become hot.
  • Avoid Cold Temperatures: Try to keep your air conditioning off in your house during the summer, and keep your heat up during the winter months. If you have to go outside in the cold, wear gloves, proper boots, and a hat. This will keep your extremities warm and prevent aches and pains.
  • Bring the Sunshine Inside: If you are finding that you are particularly fatigued or depressed, try to increase the amount of light you have inside of your house. During the gray winter months, it is easy to become depressed and tired, which will only make your symptoms worse. Purchase some halogen bulbs or a special light box to help improve your mood.

Wednesday, October 19, 2011

Oct 19,2011

Wonderful day!!!
Warm sun, cool breezes, went for a walk on my break.
I have gotten back on track with the gluten thing :(, dang I miss bread.
Been super busy with sharing my story this past couple weeks.
Got on the T.N.T. Tuesday calls and shared my Awesome story of the success I have been having with all the pieces I have placed in 'my wellness puzzle'.
Also spoke with a group at a 'dessert party'.  They were non-believers of what the products is use can do provide for people.
I have even spoke out on a Facebook site.  Makes changes for the better.
Unfortunately the facebook site did not like me, it would seem 'I make them (fibromyalgia patients) look bad.
Truly, I hope I am encouraging others to try some of the things I have tried, for maybe, they too will have a success.
The hypoglycemic diet, I have recently find, is very important to MY health.

I have been 'found' by 2 other guaifenesin protocol users, it is so good to know others are using this protocol and are having successes also.
I am ever grateful for find this and being the determined person I am, am so glad it works for me.

Hugs all,
Kim

Wednesday, August 24, 2011

August 24, 2011

It has been one year since I was formally diagnosed with Fibromyalgia.  With my first two months on 4 different medications and a final decision by myself to take my health into my own hands and seek non-traditional treatment.
I am glad I did as now I am able to control my pain levels.  I have learned which foods cause me pain and if I really want a certain food I can have it....at a price....pain.
I have also learned that because I have control of my pain by eating the correct foods I can have an occasional cheat...like two bites of a rich ooey gooey brownie...and not have pain.  Or knowing that any kind of potatoes cause me pain so if I avoid them I have no pain.
I have also learned that chemicals, certain types of chemicals, cause buzzing, tingling, sharp cold stabbing pain within my body in random areas.  If I avoid those products I won't have those sensations.  There are many other products that can be found to replace the product that does cause pain.

Learning to drink only water and like it was a huge advancement for me so much so that now that when I decide to 'cheat' and have a lemonade, it does not taste good.

I have learned that there are different types of supplements.  Different grades of supplements.  Like everything, there are good, better, excellent and just plain bad supplements.  Who know there were 'fillers' in vitamins?  Or trying to save money on our supplements really was not giving us our monies worth.  There truly is something in 'you get what you pay for' when it comes to supplements and vitamins.

All that being said, I have gained so much back to my life.
I've lost a few pounds, found energy, saved some money on products I really don't need and the best part is I'm able to get back to my favorite hobby. Quilting.

I will continue to share my journey in hopes that others will give the protocol a try to have the same wonderful effect.

Smiles

Kim

Sunday, August 14, 2011

Mappings and ME

Ahhhhh, back on track.  Back to pain free days again!  Everyone has got to incorporate this protocol into their life style.
(except the moving washing machines by themselves part).
Had another mapping on the 11th of August.
3 Spots remain...3 SPOTS!!!
You have no idea how exciting this is.
A lifetime of pain and learning to just deal with it.
A lifetime of going from doctor to doctor, getting the joy of trying a med that doesn't work.
I am so glad I didn't give up. 
Researched and found Dr St Amand's protocol.
Found Dr. Muhich who follows this protocol and WAAAAA LAAAAAAA!

PAIN FREE DAYS.  ME!!!!

You have got to try too :)